Friday, February 12, 2010

Jonah's EB Auction!

I really, honestly can't fathom that there are people out there who don't know about Jonah and his story, or who haven't read Patrice's blog (Patrice is Jonah's absolutely amazing mom). But if you haven't, he's a little boy who is really worth getting to know! Jonah has EB... and because I stink at trying to explain things, I'll send you over to read Patrice's Blog, where you can learn all about it. EB is SUPER rare, and we are fighting for a cure. In celebration of Jonah's first birthday (which many EB babies don't make it to), Matt and Patrice and tons of their closest friends are pulling together to have an auction to support DebRA (an organization to support EB patients and their families and research for a cure).  There have been LOTS of awesome items donated (including a photo session and photo package from Photographic Memories!), and they welcome your bids on these items! All of the proceeds are going to directly to DebRA. I hope you'll all participate in this worth event!! Check it out here.

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